Epaul
Alan Waddle
- Joined
- Jun 27, 2020
- Messages
- 955
- Reaction score
- 61
Hello all,
Mods have given permission for this, It's HADDS month. HADDS is a rare neurodevelopmental syndrome caused by a mutation (deletion, missense, frameshift, duplication, etc.) in the EBF3 gene on chromosome 10q26.3.
My partners young grandaughter has this. They are supported by a great charity called Unique which doesn't receive any funding, therefore I am trying to raise a couple of pound for them by doing a charity shave of my beard, it will mean a first time being clean shaven for 17 years which is quite a scary prospect but well well worth it, I have set up a justgiving page so if you have a spare shilling I would be eternally greatful.
Thank you for taking to time to look and read
Paul
Mods have given permission for this, It's HADDS month. HADDS is a rare neurodevelopmental syndrome caused by a mutation (deletion, missense, frameshift, duplication, etc.) in the EBF3 gene on chromosome 10q26.3.
My partners young grandaughter has this. They are supported by a great charity called Unique which doesn't receive any funding, therefore I am trying to raise a couple of pound for them by doing a charity shave of my beard, it will mean a first time being clean shaven for 17 years which is quite a scary prospect but well well worth it, I have set up a justgiving page so if you have a spare shilling I would be eternally greatful.
Thank you for taking to time to look and read
Paul

Brave the shave, Paul's fundraiser for UNIQUE (Rare Chromosome Disorder Support Group)
Help Paul Edwards raise money to support UNIQUE (Rare Chromosome Disorder Support Group)
www.justgiving.com