When I first met Darran what seems a lifetime ago I was totally ignorant of Amy's condition. So google came into it's own.
A couple of articles
From 2008
SHE may only be the size of a seven-year old-child, but Amy Prosser packs a punch.
www.walesonline.co.uk
And this from 2005
STILL WALKING TALL
14:00 - 29 March 2005
Amy Prosser was diagnosed with Tay Syndrome in 1988, but
showed signs of the disorder from birth. She had Collodion -
red, raw looking skin - and was small throughout her childhood.
There were other problems too: "My hair used to fall out and I
used to be really giddy - I'd fall over a lot," she says. "In
primary school my hair was coming out in clumps."
Luckily Amy's hair has become stronger since she reached her
teens.
Despite her small size and mild learning difficulties, Amy
completed her education in mainstream schools, attending
Ynysmaerdy Primary, Cwrt Sart Comprehensive, then Neath
College.
Her courage and warmth have won her plenty of friends and
admirers along the way.
She received a Child of Achievement award in 2000 and when
poet Adrian Mitchell met her in Ynysmaerdy school he was so
enchanted that he wrote a poem, For Amy, which is published in
several books.
She has also charmed most of the Swans football team.
"I started supporting them about five or six years ago," she
says. "My dad took me to my first game and now if I missed a
game I'd go nuts!"
Four Swans players - Lee Trundle, Brad Maylett, Roberto
Martinez and Kristian O'Leary - recently visited Amy in
hospital as she recovered from her hip operation.
"I still felt really bad but I was so happy to see them!" she
says.
Amy used to be quite sporty herself - she even took part in a
cycle ride to and from Swansea in her school days - but her
movements became restricted as her hip joints wore away.
"When I was in secondary school I used to ache a lot, and by
the time I was in college I was in a lot of pain," she says.
Amy went to her GP, who spotted that one of her legs had
become shorter than the other.
"Doctor Murphy is brilliant," she says. "He talks to me like
an adult. He clearly explained what was wrong with my leg, and
made an appointment for me to see an orthopaedic surgeon."
By December last year Amy was in Morriston hospital undergoing
a hip replacement operation.
"It took about four hours and I was in hospital for a week,"
she says. "Beforehand my hip was very, very painful and I
could barely walk. When I woke up I remember asking mum how I
looked. She said I looked fine, but later she admitted I'd
looked really rough!"
Within 24 hours Amy was out of bed and walking around. She had
a large scar on her left leg, but the wound quickly healed and
as time passed, her pain lessened.
"It's much better now," she says, "but when I'm walking around
it still aches a bit."
More operations lie ahead: Amy's right hip is very painful and
eventually this, too, will need to be replaced.
"I'm also going to have a mouth operation at the end of June
or July," she says. "They're going to bring my bottom jaw
forward so it's in line with my upper jaw."
In the mean time, Amy plans to enjoy life. She lives in Briton
Ferry with her mum Jocelyn, her dad Darran and her brother
Ricky, 16, who does not have Tay Syndrome.
Like most young women, Amy enjoys music and the Internet. She
also loves horror films, but occasionally she has trouble
getting in to cinemas and theatres because of people's
misconceptions about her age.
Not long ago, at Freddie Starr's 18-rated stage show, she had
to put up with two women tutting loudly that "a child" was in
the audience.
Clothes shopping is tricky, too. When you have to buy age six
to seven clothes, it can be hard to find the styles you want.
But ask Amy if her size bothers her, and she replies with a
firm "No". She has such strength of character that she never
seems small.
Her dad, Darran, sums it up nicely. He often tells her: "You
haven't got to be tall to be big - and you're massive."
The last comment says it all
"You haven't got to be tall to be big - and you're massive."
Happy 40th Amy